digital divide

Big-Picture Health Information

Pattern ID: 
742
Pattern number within this pattern set: 
27
Jenny Epstein
Version: 
2
Problem: 

Health information cannot focus solely on individual change. Many detriments to health cannot be eradicated without changes to the physical and social world that people inhabit. If environmental and social changes are necessary to get well, individual patients cannot do so solely by seeking health care and avoiding health risks. Expert medical information and advice is inadequate to create a healthy environment that in turn creates healthy people.

Context: 

Poor people bear a disproportionate burden of global ill-health, such as diabetes, malaria, HIV/AIDS and TB. Health discrepancies between rich and poor will not be solved through better access to information alone. Good food, less stress, clean air and water, and a life with a purpose will increase health and healthy behaviors. Real change to improve health comes from a shift away from acknowledging only expert clinical opinion and toward a real-world awareness of the effect of environment on health: a shift from passive diagnosis and treatment to active engagement with the causes of and solutions to health problems.

Discussion: 

We are not, for the most part, born unhealthy. We become unhealthy. And even for those born unhealthy, a great deal of ill health may have been preventable. The campaign to find the cure for breast cancer is a good example of health information that neglects any causal connection between ill-health and the environment (in this instance, an environment which includes the use of estrogen in prescription medication), and ignores political or social change that might address environmental causes of the disease. This pattern of information, in which action comes only after the individual becomes ill but nothing has been done to prevent illness in first place, focuses on individual responsibility with no questioning of the established social order. The unspoken message is that breast cancer just happens. It is up to the individual to get involved with a screening program for early detection and treatment. Information on research that investigates environmental effects to the development of breast cancer is not part of mainstream health information.

Public health information about diabetes further illustrates the lack of emphasis on the connection between environment and health. Among Native Americans, diabetes (like most other non-infectious chronic diseases) was virtually unknown before World War II. Now, in some tribes, over 60% of adults have diabetes and the age of onset is decreasing with each generation. Much of the research on diabetes among Native Americans focuses on genetic causes or on molecular level differentiations of diabetic types. It gives short shrift to how the disruption in traditional diet and life style and the devaluation of traditional medicine correspond with the dramatic increase in the disease. The connection of indigenous people to the environment that they come from, the types of foods they eat, and activities they perform to prepare those foods are not considered an active component in their health. Diabetic health information focuses on what the individual can do to access mainstream diets and medicine. It does not validate traditional knowledge that prevented diabetes in the past, and ignores how the community as a whole can work together to recreate that knowledge. This does not mean trying to reestablish life as it was 60 years ago, but it does mean putting the current problem in a holistic context that includes history, indigenous knowledge, the interaction between diet and environment, and reasons for lack of access even to non-traditional healthy food.

In 1854, John Snow removed the handle from a London neighborhood water pump that was located a few feet from a sewer ("John Snow Pub," 2006). He believed that this sewage was causing the epidemic of cholera deaths in the neighborhood. Epidemiology textbooks emphasize Snow's connection of cause and effect as the first public health intervention of the modern era. They ignore an analysis of cause: industrialization and dislocation, poverty, over-crowding etc. What options for water did people in the neighborhood have without the pump? Seldom mentioned is that, due to the demand of a thirsty public, the handle was replaced six weeks after its removal.

Public health programs must include methods to share power with communities they hope to help. What are the contributors to ill health in their communities? What are the barriers to good health that the communities identify? Information needs to realistically address what is within the control of the individual and what will take groups of people working together to solve. Methods to improve health in disadvantaged communities must reflect the larger social change and shift in power needed.

Health information such as Fast Food Nation (Schlosser, 2002) needs to be the norm, not the exception. This book chronicles the entire environment that produces fast food, including social norms and values. Similarly, the documentary film “Life and Debt” (www.lifeanddebt.org) shows the destruction of healthy, local food production in Jamaica by the combination of multinational food businesses and international government policy.

Health information needs to do more than simply inform. What does not question the present state of affairs will not, for example, bring affordable nutritious food to poor neighborhoods. Nor will it create safe neighborhoods in areas where children cannot exercise. Better access to information may improve health care decisions to some extent; unless it also generates momentum and optimism for social change then it simply perpetuates a focus on individual behavior and treatment of symptoms that have already occurred. Health information needs to look honestly at the conditions that cause ill health, and engage not only those who suffer illness but the entire social and regulatory apparatus that can play a role in improving the conditions that people live in.

Solution: 

Demand and produce health information that identifies environmental and social causes of ill-health. Analyze the interconnection between these causes and their solutions, and bring individuals, communities and governments together in putting the solutions into effect. If the struggle with disease becomes a struggle with established power, you may be on the right track.

Verbiage for pattern card: 

Real change in improving health means shifting away from expert clinical opinion only and towards awareness of the effect of environment. Demand and produce health information that identifies environmental and social causes of ill-health. Analyze the links between causes and solutions, and bring individuals, communities and governments together in putting the solutions into effect.

Pattern status: 
Released

Cyberpower

Pattern ID: 
829
Pattern number within this pattern set: 
25
Kate Williams
Dominican University
Abdul Alkalimat
University of Toledo
Version: 
2
Problem: 

In the age of the Internet, if someone can’t send an email or browse the web, they are much like the person in the age of print who had to sign their name with an X. Many people and communities are still catching up to the information age and what digital tools offer. One word for what they offer is Cyberpower—power in cyberspace.

The usefulness of this word can be understood in comparison to another useful word: e-commerce. E-commerce is a word that summed up what businesses, coders and consumers were doing. On the basis of that summation, many more people were guided in that direction, and e-commerce became more advanced as a result. Millions are now buying and selling online, with the goods delivered in the real world. Our experience with the word cyberpower is the much same: the word came into use based on practice; then it mobilized more people to exercise their cyberpower. As with e-commerce, when you wield cyberpower, the “goods”—power—are delivered in the real world, in a cycle from actual to virtual to actual.

Context: 

Digital inequality often impacts the same people as older inequalities such as poverty, oppression, discrimination, exclusion. But the new tools are so powerful that not using them sets individuals, groups and communities even further back. The hardware and software are still changing, and only the users are able to shape them and shape the future. And a global conversation is taking place every day online. They

Discussion: 

Even as technology changes, diffuses, and becomes cheaper, digital inequalities persist. For certain populations, access is impossible or is controlled, skills are lower, support isn’t there, or the tools and resources themselves are relatively irelevant. If the core conversations and the rich information sources are all online, yet not everyone is participating or even able to observe, how do we maintain democracy? Recent calls for a dialogue of civilizations, starting with the United Nations (1998), rather than a clash of civilizations (Huntington 1998) could be taking part online, but only if everyone can see, hear, and speak in cyberspace.

It is not yet well understood, but communities in crisis—be it from poverty, disaster, war or some other adversity—are known to turn to technology for response and recovery. Cellphones, impromptu cybercafés, the Internet, all helped in the Gulf hurricane recovery. Farmers on quarantined farms quickly mastered home Internet use during England’s foot-and-mouth-disease outbreak. The US armed forces now strategize in terms of land, sea, air, and cyberspace. Immigrants all over the world have created digital diasporas. (Miller and Slater 2000) Whatever language people use to describe it, cyberpower is the driver in all these cases.

Hiphop can be seen as a technology-based response to crisis and a cyberpower project. In a community-based seminar, we proposed to create a CD of original raps about IT. Students and community members were skeptical—one said, “We don’t know anything about computers”—but all the music making was digital, the tools were put together in bedrooms and basements, and the result was a compilation of 15 tracks. Sample these lyrics by S. Supreme:

Information technology
Skipping the Black community with no apology
Flipping the power off
On an already alarming deficit,
So please, please, PLEASE, PASS THE MESSAGE KID!
Ohh Umm Diddy Dum Dum
If he don’t turn his Ice off
And turn his head past the gas of Microsoft
He’ll really be lost like the tribe, ‘cause the time is now and that’s a bet
How you throwing up a set and you ain’t on the Net,
Yet you say you’re a G?
I said I’m not Chuck D, but welcome to the terror
If you ain’t ready to build in this information era
Survival of the fittest, our rights get diminished, cats be on their Crickets
But don’t know about Linux

In this track cyberpower is talking about cyberpower.

Another example of cyberpower is our experience with an auction of Malcolm X’s papers. The sale, planned for March 2002, was discovered online, then thousands protested online and the sale was stopped. The process began when monitoring eBay for items related to Malcolm X, we discovered that eBay’s auction house, Butterfields, was about to sell thousands of pages of Malcolm’s diaries and notes, recovered from a storage locker, for an expected price of $500,000. Using the listserv H-Afro-Am, this news was spread across multiple communities of scholars, librarians, activists, and others. The American Library Association then created a story on their online news site which is fed to more sites and individuals. The next day The New York Times did a story. On the third day The Guardian newspaper ran a story about the impending sale and the online groundswell against it. The listservs and the news articles alerted the family and the Schomburg Center for Research in Black Culture at the New York Public Library, who wre able to negotiate the postponing of the sale, then its cancellation. An agreement was negotiated with the seller whereby the materials are now in the possession of the family, housed at the Schomburg’s archives. In sum, the important historical papers (actual) were being auctioned (virtual); thousands of people were mobilized (virtual); traditional media carried the story (virtual and actual); and ultimately the materials were withdrawn from sale and placed intact in a public library archive for scholars and the public (actual).

Another example of cyberpower is told by Mele (1999). Faced with a teardown of their housing project, tenants in Wilmington, Nouth Carolina wrangled the key to a long-locked community room, internet access for the lone computer (actual), and via email and listservs (virtual) recruited architects and planners to help them obtain, digest and answer developer and city plans. They won an actual seat at the negotiating table and, more important, key changes to the teardown plan that included interim and long-term housing for residents.

All sorts of new tools for exercising cyberpower are in wide usage at this writing, for example, MySpace, blogs, wikis, and the online video festival known as YouTube. Use of any of these tools locates you in a lively community. The idea from Putnam (2000) that we’re “bowling alone,” not connecting with other people in an atomized world, is, as Lin (2001) asserted, trumped by the fact that we are not computing alone.

Solution: 

Cyberpower means two related activities related to empowerment: 1) individuals, groups and organizations using digital tools for their own goals, or 2) using digital tools as part of community organizing. The general idea is that people can use cyberpower in virtual space to get power in the actual space. Cyberorganizers help get people cyberpower just as community organizers help get communities empowered.

Verbiage for pattern card: 

Digital inequality often affects the same people as traditional inequalities such as poverty, oppression, discrimination, and exclusion. With Cyberpower individuals, groups and organizations use digital tools for their own goals. Cyberpower also means using digital tools as part of community organizing and development, when Cyberorganizers help people gain Cyberpower.

Pattern status: 
Released

Anti-Racism

Pattern ID: 
783
Pattern number within this pattern set: 
23
Lori Blewett
The Evergreen State College
Version: 
2
Problem: 

Perceived physiological and cultural differences are easily exploited by political elites for the purpose of gaining and maintaining social control. Discrimination and violence are a common consequence of perceiving one group of people as less trustworthy, moral, intelligent, or civilized (and ultimately less human) than another group. Imbalances of power are seen as reflections of individual strength and cultural merit rather than systemic injustice. Efforts toward creating a desirable society continue to be hindered by unquestioned privilege, fear, and prejudice across race, caste, and ethnic divisions.

Context: 

There are few cultures in the world that have not been affected in some way by European concepts of race. In some cases, European colonizers layered race on top of long- standing caste hierarchies or religious prejudices to further subjugate, divide, and control colonized people. In the United States, alliances between blacks and poor whites, for example, were intentionally subverted by elites who bestowed minimal advantages on lower-class whites to prevent class-based uprisings. The historical legacy of long-maintained racial divides and inequalities continues to affect any organization attempting to create a more just and sustainable society, even when racism is not the primary issue that an organization or movement wants to address. As with gender divisions, race, caste, and class hierarchies often intertwine to erode the effectiveness of organizations and their communication, especially when patterns of privilege and bias go unnoticed.

Discussion: 

This pattern has two major dimensions: Anti-Racist Awareness and Anti-racist Action.

Awareness begins with seeking a deeper understanding of the multiple ways that racism and race privilege operate in the lives of individuals and organizations. Anti-racist books, movies, workshops, lectures, discussions, and observation can all be useful tools for raising awareness. Multi-cultural history books (e.g., "A Different Mirror") or social/economic analysis (e.g., "Black Wealth White Wealth") can help us see beyond the myth of the melting pot, and understand how social structures maintain racial inequity generation after generation. Films like "Banking on Life and Debt" help us understand the international forces that maintain global inequalities built upon European Colonialism, and how those inequities reinforce domestic racism. Reflective essays like "White Privilege and Male Privilege" can help us see how privileges are bestowed upon whites on a daily basis, even when they do not seek racial advantage.

By analyzing social and historical dynamics of power and privilege, we understand why few people reach adulthood without internalizing social hierarchies that shape our unconscious perceptions of one another. At the same time it is important to become more aware of the possibilities for change and resistance. We must learn about the successes of communities of color that have struggled against racism, and we must learn about inter-racial solidarity that has aided anti-racist efforts at numerous times and places in history.

Armed with a better awareness of the dynamics of racism, members of an organization can become more reflective about their own practices. Developing and maintaining an anti-racist consciousness is an on-going process for most people, but it is especially challenging for members of dominant racial groups. Because information and communication represented in the dominant culture are likely to reinforce the racial status quo, whites in the U.S., for example, must take extra care to seek the perspectives of people of color who are critical of mainstream policy, discourse, and ideology.

Action begins with recognition that we are not powerless in the face of institutionalized or interpersonal racism, and that challenging racism is both an individual and collective responsibility. Examples of anti-racist action are plentiful --from individuals interrupting racist jokes to transnational organizations uniting against contemporary colonialism.
An anti-racist orientation can help guide many facets of an organization: out-reach practices, service providing, hiring, resource allocation, group communication, etc. With an anti-racist perspective, individuals can work to create organizations that both embrace ethnic diversity and model a commitment to racial justice. Organizations whose members are primarily from privileged communities can seek guidance from leaders that represent grassroots organizations in other communities. Groups can form alliances across racial or national boundaries making shared use of differing access to information, experiential knowledge, economic resources, and political power.

Organizations can promote anti-racist solidarity by investigating the racial dimensions of any issues that they are working on. For example, anti-racist environmentalists have exposed the disproportionate effects of toxic waste on communities of color. Information technology activists interested in racial justice have designed projects to accomodate differing needs in differing ethnic communities. Within the anti-war and anti-globalization movements, activists with an anti-racist orientation have drawn attention to the role that racist discourse and ideology play in maintaining public support for international policy.

The greatest challenge to anti-racism is the discomfort, defensiveness, and animosity that it often engenders among whites (or other racially privileged groups—depending on the context). Rejection often happens when individuals from privileged groups do not see themselves as responsible, in any way, for the conditions that other racial groups experience. Talking about race privilege and unconscious racial biases can seriously threaten people’s positive sense of self. Many people are more comfortable believing that innate characteristics of racial groups cause the problems or successes that each groups experience, and some people even perceive themselves to be discriminated against when members of other racial groups demand social change to alleviate injustices. Whites who are economically disadvantaged, (or who experience discrimination related to age, gender, sexual orientation, physical ability, or other characteristic), sometimes see anti-racism as a denial of their own hardships. In extreme cases, oppressed whites may react so negatively to anti-racist critiques that they turn toward white supremacist or neo-nationalist ideologies to shore-up their low self-esteem (see Paul Gilroy for a critique of British anti-racist education of working class youth). People of color also sometimes oppose anti-racist perspectives when they have been convinced by the dominant culture that racism is no longer a significant, institutionalized problem. For people of color, becoming more aware of racism can be particularly painful and disempowering.

In order to be successful, anti-racists must recognize the strength of dominant racial attitudes and ideology. Anti-racist education and discourse should be geared toward the forms of denial and dismissal that are most common in a particular context. Educational activities should include follow-up support to help people process new, sometimes disturbing, ways of seeing the world. Resources that put a human face on the experience of racial oppression can be particularly useful. Focusing on the shared costs of racism (and the shared benefits of ending it) may be the best way to encourage inter-racial solidarity. When both whites and people of color recognize that ending racism is in their interests, they begin to see themselves as part of the long history of resistance to racism. This sense of solidarity across time and racial boundaries adds meaning and a sense of hope to the difficult, and sometimes emotionally painful, process of recognizing and challenging race privilege and racism.

Solution: 

Only by recognizing racism (personal and institutional) and actively challenging it, can we hope to overcome the racial divisions that inhibit effective problem solving and weaken progressive movements. An anti-racist orientation to social change can help organizations successfully challenge policies and practices that mask power, exploitation, and resource grabbing behind the guise of liberal individualism and national interests.

Verbiage for pattern card: 

Efforts to improve societies are hindered by privilege, fear, and prejudice across race, caste, and ethnic divisions. As with gender divisions, other hierarchies intertwine to erode the effectiveness of organizations. Anti-Racism has two dimensions: Anti-Racism through awareness and Anti-Racism through action. An anti-racist orientation to social change can help organizations challenge policies and practices that mask power, exploitation, and resource grabbing.

Pattern status: 
Released

Translation

Pattern ID: 
452
Pattern number within this pattern set: 
15
Douglas Schuler
Public Sphere Project (CPSR)
Version: 
2
Problem: 

People who speak different languages cannot understand each other without benefit of translation. A related problem, which may be more insidious, arises when two or more people think they're speaking the same language when they're not. "Languages," furthermore, are of various types, in addition to what we usually think of — English, Japanese, or Hindi, for example. Some people seem to speak only "Technical" or "Post Modern Academician" which can be incomprehensible from outside those cultures. Finally, there is often an implied "pecking order" in which one language (and its speakers) are viewed as dominant or more important while other languages (and its speakers) are devalued and bear an unequal share of the burden of understanding.

Context: 

This pattern applies in any situation where two or more languages are employed. Here "language" is applied broadly. For example, with global climate change looming, scientists must be able to engage in two-way conversations effectively; social scientists must be able to do the same if their work is to have relevance and resonance. Translation takes place when any two worlds of discourse are bridged.

Discussion: 

This includes translation between systems of knowledges (e.g. theorist to practitioner) as well as translations between different languages. "A text is a machine for eliciting translations." — Umberto Eco, Translating and Being Translated

Although cultures are maintained through a variety of institutions, the use of a common language may be the deepest and most abiding tie that binds a culture together. Language is a reflection of, and a window into, culture. Of course people speak many languages; children may invent secret words to describe the world they see and would like to see, Slang is shared by youth culture, academic disciplines use certain phrases, neolisms etc. to participate in a shared intellectual pursuit, while religious communities have expressions of sacred and profane ideas of special significance. If, however, every person in the world spoke only one language, a language that had no words in common, then each group would be, in essence, a group by itself cut off from the rest of the social world. Trade would be virtually impossible as would diplomacy and sharing of intellectual creations, technological and artistic. War is one social activity that probably would not be hampered by this barrier to communication (although negotiating an end to the hostilities would be extremely difficult, if not possible.) Thus translation is a bridge that connects two or more cultures or two or more people. Translation allows two or more groups or people to come to a common understanding and it allows them to take advantage of the special or expert knowledge of the other. Translation is also a social process that is embedded in particular social contexts and is subjected to the dictates of that context. For example, the burden of translation is often expected to fall upon the lower status or less dominant group. Thus, many Spanish speakers in the U.S. are "expected" to learn English (majority rules — in more ways than one). People who lack fluency in the dominant language (English, BBC English, or Techno-speak, for example) are often considered ignorant. Umberto Eco captures a key difficulty in translation:

"Equivalence in meaning cannot be take as a satisfactory criterion for a correct translation, first of all because in order to define the still undefined notion of translation one would have to employ a notion as obscure as equivalence of meaning, and some people think that meaning is that which remains unchanged in the process of translation. We cannot even accept the naïve idea that equivalence in meaning is provided by synonymy, since it is commonly accepted that there are no complete synonyms in language. Father is not a synonym for daddy, daddy is not a synonym for papà, and père is not a synonym for padre."
 — Umberto Eco (2001).

As Eco makes clear in the quotations above, words in languages don’t have one-to-one equivalence. For that reason successful translation relies on a reasonable yet partial solution (actually a type of negotiation) to a number of interdependent problems. Totally accurate translation is impossible but imperfect translation is ubiquitous — and essential. Moreover, the context of the words in the sentence, the sentence in the paragraph, etc. etc. that is being translated, all within the context of the inspiration and intent and audience are all relevant when translating. Translation, therefore, is not a mechanical act, but a skilled and empathetic re-rewriting or re-performing of a text or utterance or intention in which an understanding of the two cultures being bridged is essential. More precisely, an understanding of the two respective audiences, intended and otherwise, the vocabulary they employ, their education, biases, fears, etc. are all central to a good, solid and mutually satisfactory translation. Although the following quotation is specifically examining the differences of psychology and sociology by their focus of individuals and collective bodies respectively, it captures a central question in translation.

To address the problem of different and incommensurable perspectives in the human sciences, two issues need to be considered. First, we must find a way to link perspectives without simply reducing one to another. One guiding assumption of this volume is that attempts to account for complex human phenomena by invoking a perspective grounded in a single discipline are as unlikely as were the attempts of each of the three blind men to come with the true account of an elephant. The goal, then, is to arrive at an account — a kind of "translation at the crossroads" — that would make it possible to link, but not reduce, one perspective to another.
   — James V. Wertsch (1998)

Solution: 

Think about the critical role of translation and, if possible, become a translator — or at least when the need arises where you can help bridge a gap of understanding. From the point-of-view of social amelioration translations between two particular cultures may be of more immediate than two others. On the other hand, all cultures must ultimately have connections and mutual understanding is necessary, but not sufficient, for a positive future.

Verbiage for pattern card: 

People who speak different languages cannot understand each other without benefit of Translation. And sometimes people think they're speaking the same language when they're not. Translation takes place when any two worlds of discourse are bridged. Think about the critical role of Translation and, if possible, become a translator or — when the need arises — a person who can help bridge a gap of understanding.

Pattern status: 
Released
Information about introductory graphic: 
Babel by Bruegel, Wikicommons
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